Congress Council calls for financial and workplace security for family caregivers

COVID-19 pandemic has created urgency and momentum to address family care

WASHINGTON, September 23, 2021 / PRNewswire / – Congress-mandated council made key recommendations to support family caregivers, including a call for financial and workplace security and the expansion of home and community services, among other actions .

The recommendations were developed by the Congress-authorized RAISE (Recognize, Assist, Include, Support, and Engage) Family Care Advisory Council, made up of caregivers and experts after a multidimensional two-year effort that enabled to collect information from family caregivers across the country. The recommendations fall under five objectives, which include:

  • Increased awareness of family caregivers increase public understanding of the contributions of caregivers, including helping people identify themselves as caregivers so that they can get the support they need.

  • Engage family caregivers as partners in health care and long-term services and supports better integrate family caregivers into health care processes and systems.

  • Improve access to services and supports for family caregivers including counseling, respite care, peer support, training on common home medical tasks, and hands-on help such as transportation. A recommendation to strengthen the paid workforce of caregivers is also included.

  • Support the financial and professional security of family caregivers reduce the impact that family care can have on the financial well-being and professional life of caregivers.

  • Generate research, data and evidence

Practices to help create policies and interventions that meaningfully help caregivers.

“The RAISE recommendations represent the most comprehensive and meaningful ways to support family caregivers who are in desperate need of support,” said Rani Snyder, MPA, vice president of the program at the John A. Hartford Foundation. “In collaboration with our Foundation, the National Academy for State Health Policy and the Administration for Community Living, the Council drew on the latest research on caregiving, interviewed more than 1,600 family caregivers, organized groups discussion and interviewed experts. Now we must bring these recommendations to life with concrete federal, state and private sector actions. “

According to the AARP and the National Alliance for Caregiving, approximately 53 million people each year provide a wide range of aids to support the health, quality of life and independence of their loved ones. It is estimated that one in seven people is a family caregiver, and more than two-thirds of people will need help with tasks as they get older.

“States have been at the forefront in providing a variety of services, including respite care, training for difficult medical tasks, and services to help families live in their homes and communities,” said Hemi Tewarson, executive director of the National Academy for State Health Policy. “State leaders see value in helping family caregivers delay costly nursing home care, provide home and community services, and deliver better outcomes to those in need of care and to their families. “

The Council reported that the COVID-19 pandemic has highlighted and exacerbated the challenges of family caregiving, including the struggle to balance work, family and caregiving, with many caregivers having to leave the market work. There is currently no national strategy that provides guidance on how the public and private sectors at all levels can support family caregivers. The recommendations serve as the basis for the next National support strategy for family caregivers. The strategy will result in increased recognition and support for family caregivers by proposing specific actions that can be taken at federal and state levels, by local communities, philanthropic and educational organizations, as well as healthcare providers and long-term service. The strategy will also provide a roadmap for the nation to strengthen its support and recognition of the critical role family caregivers of all ages play in long-term health care and support systems.

The John A. Hartford Foundation and the National Academy for State Health Policy support the RAISE Family Caregiving Advisory Council by providing resources, technical assistance and policy analysis.

About the John A. Hartford Foundation
The John A. Hartford Foundation, based in New York City, is a private, non-partisan, national philanthropic organization dedicated to improving care for the elderly. A leader in the field of aging and health, the Foundation focuses on three areas: creating healthcare systems adapted to the elderly, supporting family caregivers and improving the care of people with serious and end-of-life illnesses. of life. For more information visit

About the National Academy for State Health Policy
The National Academy for State Health Policy (NASHP) is a non-partisan forum of decision makers from all state governments who learns, leads and implements innovative solutions to health policy challenges. NASHP supports states as they reach branches and agencies by examining and creating solutions to critical health issues. For more information visit

About the RAISE Family Care Advisory Board
The Family Care Advisory Council (the Council) was established by the RAISE (Recognize, Help, Include, Support and Engage) Family Caregivers and first met in August 2019. The Council includes representatives from federal agencies and 15 voting members, including family caregivers; seniors who need long-term services and supports; disabled people; health care and social service providers; long-term support and service providers; employers; paraprofessional workers; local government officials; accreditation bodies; Veterans; and, where appropriate, other family rights experts and organizations. The Council is responsible for providing recommendations to the Secretary of Health and Human Services on effective models of family care and family caregiver support, as well as improving coordination between federal government programs. For more information visit


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SOURCE National Academy for State Health Policy

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